Finding My Balance

We are almost at the end of Week 2 (it's Thursday) of the Stay the F#@k Home Campaign. I've done a little grocery shopping but that's it, other than walking Cannon up and down the empty streets of Holliston, and the highly anticipated daily walk to the mailbox, from where I stare longingly up the street, looking for any sign of movement.

I am actually feeling extremely grateful. My day to day has not changed much, like I wrote last week. We have settled into a very doable routine. Usually I am frustrated that Harry sleeps so much, because I feel like he is sleeping through life. But, I remind myself that his body needs it. His epilepsy is exhausting, and he regularly needs to literally recharge.

Lately though, I must admit I am thankful. As he sleeps through the morning, I can take my time waking up, enjoy my coffee, take Cannon for a walk, engage a little with Noonday customers and photography clients, and think about what Harry and I will do for our ONE DAILY ACTIVITY. That's right. I have very intentionally set realistic goals for us. If I try to plan too much with him, try to force him to "work" or "create something" I will be sorely disappointed. My goal for each day is for us to do something together that brings us both joy. If that means cuddling on the sofa and watching his new favorite movie, or reading Harry Potter, or just closing our eyes and listening to music, so be it. I have accepted that some days will be nonproductive in the tangible sense of the word, but if I can appreciate just being present, and he is content, then I'm doing ok.

I'm also documenting on his calendar that ONE thing we did each day. A few things we have done: FaceTimed with a friend; watched the live videos posted by The Cincinnati Zoo; watched and listened to Read Alouds by various celebs as well as his Rock Star camp director; we had an Irish music dance party on St. Patrick's Day; we took our dog for a long walk. One day he wasn't feeling great (allergies are a bear right now) and I simply wrote that he napped, like the champion napper that he is. Every day is different, and spontaneous. Whichever of his developmental skills we can incorporate into our day, great! All we can do is try. 

Today was really amazing! And I will cherish it and I promise myself to not try to duplicate it. We will have many amazing days, and many quiet days, in the weeks to come. Today Harry talked to his Pop Pop on FaceTime, and he helped me make sweet potato gnocchi from scratch! I think I'm as proud of him as I am of myself! I hope it tastes good. It was definitely fun to make. I am so grateful that Harry was awake, alert, and ready to do something fun, and even let me get some pictures! This is an example of posting the precious moments that in no way reflect the majority of the day!