Harry is actually doing quite well because of all of the body and foot bracing- they have helped tremendously in developing his core strength. Even without the braces now he sits up nice and straight for extended periods of time, and he is more like a weeble- wobbling but not falling all the way down- when he sits on the floor- his favorite place to sit lately. He is also initiating steps a lot more consistently- so much so that his physiatrist recommended an eval for a super cool technology to help with more independent walking...more on that after the eval. But I wanted to hug her for just making the suggestion that he might be appropriate for it!
A quick medical update: after about 6 months of freedom, Harrison's seizures have returned. Mild right now, and hopefully temporary- growing? Increase in calories? Allergy season? Extreme fatigue from working so hard at his new school? We are working on saying goodbye to those nasty things again.
Still, we are happy, hard-working, and proud. You all know he does therapeutic riding every week, and for a long time he has been riding Chaya, a beautiful girl who is very big and strong enough to hold both him and the instructor (even me once!) together...
So last week we decided to try going back to more independent riding with sidewalkers for support, and he did great, with a sweet pony named April...
The best part was, on our way home, I told him how proud I was of him for riding by himself, and he broke out into the biggest smile :)
Harry continues with both PT and Feeding therapy each once a week, and even though he is wiped out at the end of the school day, he rallies. Pretty awesome!





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