Harrison is now 10 years old. He has made beautiful progress all around, thanks to his wonderful teachers and therapists and doctors and that magical potion, CBD oil. Medical Marijuana has done wonders for his seizure control and his development...so glad this country is finally beginning to entertain natural (non-Big Pharma) options!
Harry keeps very busy. He goes horseback riding, which he loves, and it's in our town so he has a lot of friends that ride there as well.
He just completed 3rd grade in Holliston. He has been lucky enough to have Miss Sally as his para for 5 years!!! She is an angel and so very special to our family :)
He also goes to Hebrew School at Gateways: Access to Jewish Special Education- Sunday mornings are very fun and the ride is full of giggles and cheers when he realizes where we are going!
As a third grader Harry was able to compete in our 5 Town Special Olympics, and he had a blast!! And I was lucky enough to be invited to the floor to photograph the kids and the events- you'll see some on my Sunschein Photography FB page, and here's one of Harrison with his wheelchair outfitted for soccer.
Harrison is attending Camp Arrowhead for his - gosh- 4th? summer and he LOVES LOVES LOVES it! The staff and volunteers are so amazing and he comes home either giggling or passed out. He swims, plays sports and games, practices yoga, does arts and crafts, sings and dances...just to name a few activities that wipe him out for the day.
Our big news is we completed a first floor addition, the Harrison I Randall suite / Man Cave. Complete with a bedroom, which has a track lift above the bed, a bathroom with a roll-in shower for his super-cool shower/toileting chair, a tv/therapy/chill out/playroom, and a supply closet that makes everyone jealous for it's size, including me! We also upgraded to a wheelchair accessible minivan (I put it off for as long as I could!) and we have an elevator lift in the garage. Needless to say, I am taking a lot less Advil. Harrison absolutely loves his new space- he knows it's all for him- and I knew it would make our lives easier but I really had no idea it would be so life-changing.
One more big change...Harrison will be going to a new school in the Fall, The Education Cooperative, and while we are sad to leave Holliston Public Schools, it will be really good for him. More on that when he begins.
So in addition to posting updates about Harrison, I am also going to use this blog to highlight stories of other families who have had to learn to surf like we have. I love working with families and creating meaningful photographs for them, and I thought it might be nice to share some of my experiences as I do this.
Stay tuned...
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