Talk About Dragging Out the Process

It seems that we have been able to add a new word to Harrison's vocabulary....are you ready for this? The word is "NORMAL," as in "Harrison's sleep study was NORMAL!!!!!!!!!!"

I know, I can't believe it either!!!!!

So can we get rid of the trach?  Nothing is straightforward with this kid...

Our trach doctor has always been somewhat nervous about Harrison's seizures, since the root of this evil does seem to be neurological, all those random, unidentifiable airway obstructions, so Before we schedule anything, the doc wants to confer with the neurologist...ok, he is out of the country...so let's put something on the schedule, we can always change it. (By the way, Harrison's seizures, knock wood, don't seem to effect his respiratory status)

So here's the plan: on Friday September 30 Harrison will go to the operating room bright and early for a full bronchoscopy, where they can look at his entire airway to make sure all is well and good. Then, he will be admitted to the ICU and then, out comes the trach, and then he is monitored for 24 hours. Then, whereas most kids would go home, Harrison will of course go to a regular floor where he can continue to be monitored for another 24 hours (it's fine, really, although we will be kind of bored hanging out there over a weekend, but we'll deal with it, trust me!)  Always making things complicated, this child is.

The hole should close on its own fairly quickly.

This is where we are. Yes, I am going crazy with excitement and anticipation on the inside, and my nerves will be shot as it gets closer, but I am trying not to dwell on it and I have learned to expect less so that I can be pleasantly surprised rather than grossly disappointed (who am I kidding, of course I will be grossly disappointed if it doesn't happen, but I figure, rather than holding this news in, I'll share it and then you all can pick up the pieces if our hopes are dashed, right? RIGHT??). Let's just see how it goes and hope for the best. 

It will be the second day of Rosh Hashanah, and I cannot think of a better way to start off the new year! Harrison, L'Shana Tova Tikatevu...May You Be Inscribed in the Book of Life for a Good Year (and lifetime)!