Harrison's sleep study was OK. Not perfect. Really, who wants to have a couple dozen little metal tags air-glued to their head, face, arms, and legs, and then have little tiny pieces of paper with CO2 sensors on them tickling their nostrils, on a good day??? With a new cold, including coughing congestion and runny nose, and little means of communication to really understand what is going on...not a happy boy. But he did finally fall asleep at 9:15 and slept great until 3 am. Then the coughing started, some suctioning needed, and he kept coughing off that cap on his trach. As un-gentle as the tech was applying the EEG leads, he was actually very good at helping Harrison calm down during the hour and a half that he was awake and very congested and restless. And a little Tylenol helped too :)
He finally fell asleep again around 4:30 until 5:30 and then they just ended the test since there was only a half hour to go and Harry was wide awake anyway. I did ask the sleep tech if there was room for comments on the data form, and he said yes, and agreed that he would indeed note that every time the cap came off the trach it was because Harry blew it off himself, NOT because we had to take it off to help him actually breathe. Hopefully the suctioning incidents won't work against him...my feeling is, if the trach was not in there then all that nasty stuff would not get caught on it and he would just cough it up out of his mouth like the rest of us...
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