As of today, Harrison has been 1 year trach FREE! And what a wonderful year it has been...healthy, happy, HUGE developmental progress...just what we were hoping for!
We saw the trach doctor, he was very happy, and said that even though the hole is not completely closed, we can treat him like it's not even there, he's not worried. (It was almost almost closed, and then I watched him blow it open when he had a cold last month!) No need to stitch it closed, not worth the anesthesia. He gave the OK to start swimming, and I am going to check out a swim program at the Newton JCC for kids with neurological issues.
And the diet- WOW! It's truly amazing, YOU ARE WHAT YOU EAT. I don't understand how or why, but it works. Harrison is not completely seizure free, but his seizures are way down in frequency, duration, and strength. You can just tell that he feels better, and that makes everything better. We saw the doc and the nutritionist 3 weeks after he began the diet, and they were very happy. We see them again this Friday, and hopefully we can discontinue another med- that would be 3 meds down since the diet started (2 seizure meds and and a daily antibiotic), which is really good because we have added 4 supplements and 2 laxatives! Let's just say this diet is not diaper-friendly, and the windows by the trash cans are all open- WHOOOOO
Still going horseback riding every week, and looking fantastic! Ready to start posting and then brushing his horse after the ride is over...definitely a future barn rat!
Harrison gets PT, OT, Speech, and Vision at school. He also gets Speech and PT outside of school, and has a music therapist and a massage therapist come to the house once a month- yeah, I know, monthly massage, nice.
He works so hard with all of these therapists, he is so motivated, and so proud of himself when he does well, it's really a joy to watch him work. He is sitting up very straight and tall, and working hard on sit balancing and using his hands to catch himself; he is picking up both legs, bending at the knee and stepping forward, and working on balancing while standing up. We are so incredibly proud of him every single day, and we tell him so, and he smiles.
Happy Spring everyone...Harry is enjoying it, just chillin with his dawg...
