Oh so much to be thankful for this year.
Since Harrison's trach tube was removed, he has made remarkable progress, physically, cognitively...he participates in and enjoys life so much more than he already did. And we are so very thankful for these things as well as the incredible support we get every day from our dear family and friends.
We spent a wonderful Thanksgiving with our New England family, and we missed being with the Baltimore family...hopefully next year we will all be together.
Harrison continues to ride his wonderful horse Karina, even in the cold weather. She is an Icelandic, so she loves it. Unfortunately there is no indoor ring at this barn, but Harrison has his long johns and is ready to ride! And when we win the lottery, this barn will have it's indoor ring if it has not been blessed with the necessary funds by that point. That is a PROMISE.
About this time last year we were considering putting Harrison on a special diet to control his seizures. We postponed it because it is a big change, he would have to be hospitalized for 2 days (to gradually adjust to the diet and be closely monitored), and he had just started a new med that seemed to be working very well. In fact, it continued to work well for him for a good 6 months at least. His seizures have now unfortunately increased in both frequency and intensity. We met a new doc at MGH (Mass General Hospital) yesterday, whom we liked very much, and we have decided it is time. The diet is called a Ketogenic Diet and is actually pretty easy for kids who are fed through a g-tube, because there is a formula already mixed to provide the appropriate nutrition. Kids are typically on it for 2 years once they are seizure free, although they can remain on it indefinitely from what we understand. He can still practice eating certain foods by mouth, including foods he already loves, like Greek yogurt, hard boiled eggs, and yummy salty bacon, so he will not miss out on the tastes and textures he enjoys. We meet again with the doctor, and the nutritionist, in early January...I'll keep you posted. Wish him luck!
