My heart is racing...we got a call yesterday that there was a cancellation and Harrison can go in THIS MONDAY for his bronchoscopy and hopefully decannulation!!! We are ready for a nice, relaxing, mellow weekend...maybe go get our pumpkins, take a ride to see some of the pretty foliage, watch some football, and just chill.
We go in Monday morning, and if all goes well, we will stay for 2 nights I think. Stay tuned...
Meanwhile, you know what this means- lazy mom has to actually put together that Halloween costume she has been wanting to do since last year. Hmmmmm...
On another note, this is interesting: I may have mentioned our gripes with a certain department in the state and their stinginess with providing nursing hours. Well, thanks to some incredible families, including my husband :) and also some very logical and intelligent individuals in the Department of Public Health (I think), there is now a moratorium on the practice of decreasing nursing hours at all! Until further notice, I guess. A HUGE victory for families with children who are "medically fragile." I got a call from our case manager who told me this (I already knew, I was in the loop long before she was) and also that she was cancelling her visit to evaluate Harrison's needs. I said, OK, GREAT. I am telling you, this woman sounded like she was calling to tell me someone died. She sounded so defeated. I will say, she did come through in the end for us, and managed to extend our nursing authorization through February, so that we won't lose all the (100+) unused nursing hours we continue to bank each time a nurse calls out and there is no one available to take the shift- we would have lost them in November. Many Many Thanks!!!
OK, so now we just get through the weekend. Harry, stay healthy please. You are a little junky today, it must be the weather. All in all you're good to go...we are all rooting for you, including your puppies!
